Living with and beyond cancer

Led by Dr Sally Taylor, research will be developed to discover how we can do more to care for all of our patients' needs beyond treatment and traditional support to help people live successfully with and beyond cancer.

 Current projects

Managed local follow-up of long term lymphoma survivors

A high proportion of patients with Hodgkin lymphoma and diffuse large B cell lymphoma are cured following treatment. After five years of regular hospital follow up, patients cured of lymphoma are now offered an ADAPT consultation. During the consultation the patient is given a bespoke late toxicity management plan which is shared with their GP. Patients will have annual progress checks by letter or email and they will remain in ‘open follow-up’ at the Christie with a direct link to the lymphoma team. So far 646 patients have been ADAPTed releasing 600 clinic appointments per year for other patients.

CPCR will undertake an evaluation to explore patients’ experience of the ADAPT programme. The findings will highlight any changes that need to be made to the programme and provide evidence for the use of this model in other disease groups. Evaluation documents are currently being prepared and will be distributed to patients in the next few months.

Magnetic Resonance Imaging (MRI) for the delineation of Organs at Risk (OAR) and target volumes in lung cancer patients

The primary outcome of the study is to compare target and organs at risk contours generated using combined CT with optimised MRI protocol compared to gold standard CT and PET. An additional outcome is to evaluate patient experiences of CT and MRI. CPCR will explore patient experiences using questionnaires and qualitative interviews. The study has just been submitted for ethical review and it is hoped recruitment will begin in June.

Last updated: April 2023